Dawn Graczyk

Dedicated and compassionate BSN. Well traveled and culturally competent. Extensive experience caring for children with advancing neurodegenerative disease. Compassionate and calm under stress. Well spoken patient advocate with experience as both nurse and caregiver, and ability to bridge the gap between the two. Have used my nursing skills to build and direct a multidisciplinary team including cardiology, neurology, pulmonology, mental health, and gastroenterology for the management of rare neuromuscular disease. Enthusiastic researcher. Passionate about quality patient care; equity; family support; and collaboration among healthcare team.

Volunteer experience

RareKC: Assisted my children in serving as Rare Ambassadors. Speaker for RareKC Town Hall Meeting, 2018.

Children's Mercy Hospital: serving as member of Patient Focused Advisory Committee for Rare Disease; contributed to published research

University of Missouri Kansas City: provide yearly lecture to medical students on the topic of rare disease and the importance of genetics in healthcare

Missouri EMS for Children Community Outreach Committee: recently selected to serve as member of new state-wide committee with the goal of improving relationships between EMS and families who live with conditions that require specialized emergency care. Also focused on state wide advocacy and injury prevention.