Dedicated and compassionate BSN. Well traveled and culturally competent. Extensive experience caring for children with advancing neurodegenerative disease. Current experience as a pediatric dialysis nurse.
Well-spoken patient advocate with experience as both nurse and caregiver, and ability to bridge the gap between the two. Used nursing skills to build and direct a multidisciplinary team including cardiology, neurology, pulmonology, mental health, and gastroenterology for the management of rare neuromuscular disease. Cared for medically complex patients on intermediate, ICU step-down unit. Gained pediatric dialysis experience in top-rated pediatric nephrology program.
Enthusiastic researcher. Passionate about quality patient care; equity; family support; and collaboration among healthcare team.
Volunteer experience
Patient Advocacy, RareKC
POPS Program (Parents Offering Parents Support), Children's Mercy Hospital
RareKC: Assisted my children in serving as Rare Ambassadors. Speaker for RareKC Town Hall Meeting, 2018.
Patient Focused Advisory Committee for Rare Disease
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University of Missouri School of Medicine: guest lecturer 2018-2022. Title: A parents journey toward a diagnosis for children with rare disease
Children's Mercy Hospital, CareForRare (Germany, United States): hosted German bicyclist on US tour in support of research for children with rare diseases, 2019 and 2022
Children's Mercy Hospital: spoke with media on multiple occasions to raise awareness for rare disease and Children's Mercy Research Center, Genomic Answers for Kids