THELMA ROSIE LOVE
Chantilly,VA
Summary
A high-impact Manager, Patient Advocacy & Engagement with 12+ years of professional experience in the rare disease/oncology ecosystem, specifically focused on the blood cancer community. Deep-seated commitment to transforming the patient experience through thoughtful, compliant engagement and enduring partnerships. Expert in designing and executing community-focused initiatives (roundtables, workshops) and translating patient insights into actionable recommendations that inform cross-functional strategy (Clinical, Medical, Commercial). Proven proficiency in managing the lifecycle of grants, sponsorships, and budgets in alignment with company policies. Champion of a patient-first culture, adept at developing accessible lay summaries of scientific content and integrating patient perspectives into development programs for novel therapies.
Overview
12
12
years of professional experience
Work History
Manager, Patient Experience Data & Strategy
AbbVie
Chicago, IL
11.2024 - 09.2025
- Collaborated with Corporate Communications, Medical Affairs, and Marketing to drive the compliant integration and elevation of the patient voice in development programs, specifically within the oncology landscape (multiple myeloma).
- Led the design and co-development of high-quality patient-facing educational materials and lay summaries on patient-reported outcomes to increase understanding and participation in clinical trials.
- Contributed to the development and implementation of patient-experience data/PFDD standards and best practices across functions, fostering meaningful industry research collaboration with key external patient advocacy organizations.
- Patient-Centered Outcomes Research (PCOR) (Contracted through Actalent) |https://www.actalentservices.com/en
Research Manager & Patient Engagement Consultant
Self Employed Consulting & University of Maryland
Baltimore, Maryland
01.2016 - 01.2023
- Partnerships & Insights: Built and maintained trusted relationships with patient leaders, advocacy organizations, and caregivers, convening and leading advisory boards and community advisory roundtables as development partners.
- Grants & Budget Management: Assisted in managing patient advocacy grants, competitive research grants, sponsorships, and related requests through contract execution and budget development, successfully securing external funding.
- Merck Investigator Initiated Sponsorship Program: $282,000
- Strategy Translation: Translated community insights into actionable recommendations that ensured consistent and patient-centric internal and external cross-functional messaging.
- Program Design: Designed and delivered community-focused initiatives, educational workshops, and landscape assessments, working closely with clinical researchers, medical affairs, and market access teams to integrate patient perspectives into clinical trials and materials.
- Compliance & Culture: Managed all IRB submissions, vendor contracting, and budgets in compliance with all HIPAA, legal, and University policies, championing a patient-first culture through a dissertation project focused on patient preferences in oncology.
- Equivalent to Research Manager | https://www.umaryland.edu
Research Manager, Evidence Generation, Value, and Access
Ipsos
Washington, D.C.
02.2015 - 08.2016
- Served as the lead project manager, creatively designing multi-site study management strategies, including patient engagement, recruitment, and budget/timeline management.
- Promoted PFDD best practices and managed patient advocacy organization partnerships for patient recruitment, mentoring junior staff on diverse stakeholder engagement strategies.
- https://www.ipsos.com
Associate Outcomes Researcher
ICON plc
Bethesda, MD
08.2013 - 02.2015
- Actively engaged with and represented the client when engaging cross-functionally with multiple rare disease and oncology advocacy organizations, reinforcing commitment to patient-focused innovation in compliance with company policy.
- Supported COA strategy for clinical trials across multiple disease areas, gaining specific experience in Oncology (NSCLC, Breast Cancer) and understanding the oncology/hematology advocacy ecosystems.
- Proficient in direct patient interaction (concept elicitation, cognitive interviews) and co-development of study documents and scientific publications.
- Commercialisation and Outcomes | https://www.iconplc.com
Education
MS - Pharmaceutical Health Services Research
University of Maryland Baltimore
Baltimore, MD05.2024
Doctoral Coursework - Pharmaceutical Health Services Research
University of Maryland Baltimore
Baltimore, MD06.2023
MPH - Community Health and Prevention
Drexel University
Philadelphia, PA06.2012
BGS - General Studies
University of Michigan
Ann Arbor, MI08.2007
Skills
- Oncology/Hematology Ecosystems
- Strategic Stakeholder Engagement
- Patient Advocacy Relationship Building
- Cross-Functional Leadership
- Patient-First Culture Champion
- Grant & Sponsorship Management
- Vendor Management
- HIPAA/IRB
- Lay Summary Development/Health Literacy
- Insight-Gathering Sessions
- PDUFA Legislation
- PFDD Guidances/Methods
Affiliations And Awards
- Rho Chi Pharmacy Honor Society Inductee, 2020
- Donald O. Fedder Memorial Fellowship Awardee, 2019
Technology And Policy Knowledge
PDUFA Legislation, PFDD Guidances, Drug Reimbursement, Regulatory Compliance, HIPAA, MaxQDA, NVivo, SPSS, SAS, Microsoft Office Suite, Survey Monkey, Qualtrics
Education And Academic Achievements
- MS, Pharmaceutical Health Services Research, University of Maryland Baltimore, Baltimore, MD, 05/01/24
- Doctoral Coursework, Pharmaceutical Health Services Research, University of Maryland Baltimore, Baltimore, MD, 06/30/23
- MPH, Community Health and Prevention, Drexel University, Philadelphia, PA, 06/01/12
- BGS, General Studies, University of Michigan, Ann Arbor, MI, 08/01/07
Core Competencies
Oncology/Hematology Ecosystems (Blood Cancer Focus), Strategic Stakeholder Engagement, PFDD Methods/Legislation, Cross-functional Leadership, Patient-First Culture Champion, Grant & Sponsorship Management, Budget Execution, Regulatory Compliance (HIPAA, IRB), Vendor Management, Patient Access & Support, Lay Summary Development, Health Literacy, Community-Focused Initiatives, Insight-Gathering Sessions, External Messaging Consistency
Timeline
Manager, Patient Experience Data & Strategy
AbbVie
11.2024 - 09.2025
Research Manager & Patient Engagement Consultant
Self Employed Consulting & University of Maryland
01.2016 - 01.2023
Research Manager, Evidence Generation, Value, and Access
Ipsos
02.2015 - 08.2016
Associate Outcomes Researcher
ICON plc
08.2013 - 02.2015
MS - Pharmaceutical Health Services Research
University of Maryland Baltimore
Doctoral Coursework - Pharmaceutical Health Services Research
University of Maryland Baltimore
MPH - Community Health and Prevention
Drexel University
BGS - General Studies
University of Michigan