Research Advisory Board Member
Main duties performed for groups studying future Alopecia Areata (AA) therapies:
- Advise teams on optimal treatment frequency for AA by sharing insights from local support groups and recent research trends
- Adapt study questionnaires and marketing materials to ensure terminology is relevant for capturing data on both common and unique manifestations of AA
- Advocate for tracking mental health and quality of life outcomes as key indicators of treatment success for AA
- Assist international research groups in optimizing US patient recruitment by connecting teams with nationwide AA registry networks
Other contributions to AA patient advocacy:
- Filmed a long-form interview detailing my personal journey with AA Universalis, presented at the National Sales Meeting of a major US pharmaceutical company
- Counseling children with AA nationwide as a certified Youth Mentor