JEANA SWEENEY
Summary
Visionary nonprofit leader with 25+ years of experience driving mission-focused organizations to achieve financial growth, donor expansion, and strategic impact. Proven ability to build high-performing teams, cultivate major donors, and lead innovative fundraising campaigns. Deep expertise in patient advocacy, research funding, and community engagement. Passionate about empowering individuals affected by rare and undiagnosed diseases.
Overview
35
35
years of professional experience
Work History
Chief Engagement & Gift Officer
Charcot-Marie-Tooth Association (CMTA)
01.2022 - Current
- Doubled CMTA’s revenue in five years through strategic donor engagement
- Developed and led a national fundraising platform, raising $5 million in grassroots efforts.
- Spearheaded planned giving efforts, securing $8.7 million in legacy gifts.
- Designed and executed Giving Tuesday campaigns, tripling year-over-year contributions
- Managed a five-person development team, overseeing donor relations and major gifts
- Expanded the CMTA branch system from 32 to 75 branches, generating $2.2 million in community-driven fundraising
- Co-founded Camp Footprint, a program supporting youth affected by CMT, and successfully lobbied for state funding ($125,000 annually)
- Created a corporate sponsorship platform, securing $400,000 in funding
- Strengthened board governance by identifying and recruiting high-impact board members
Development Director
Charcot-Marie-Tooth Association (CMTA)
01.2018 - 01.2022
Director of Community Engagement
Charcot-Marie-Tooth Association (CMTA)
01.2009 - 01.2018
Business Developer & Branch Manager
USSCO Federal Credit Union
01.1990 - 01.2003
- Led membership expansion efforts, increasing enrollment by 3,500 members in one year
- Developed strategic partnerships with 70+ businesses to grow the organization’s reach
Tour Organizer & Marketing Specialist
McIlwain Charter Bus Lines
- Designed custom travel itineraries and marketing strategies, increasing sales and brand awareness
Education
Business Management Certificate -
Pennsylvania Highlands Community College
Leadership & Management Training -
American Management Association, CUNA Mutual
Special Needs & Patient Advocacy Training -
Skills
- Nonprofit Leadership & Governance
- Major Donor Cultivation & Stewardship
- Strategic Fundraising & Grant Acquisition
- Patient Advocacy & Community Engagement
- Corporate Sponsorship & Partnership Development
- Board Development and Stakeholder Relations
- Research Funding & Program Expansion
- Marketing, Branding & Public Speaking
Key Skills Expertise
- Nonprofit Leadership & Governance
- Major Donor Cultivation & Stewardship
- Strategic Fundraising & Grant Acquisition
- Patient Advocacy & Community Engagement
- Corporate Sponsorship & Partnership Development
- Board Development & Stakeholder Relations
- Research Funding & Program Expansion
- Marketing, Branding & Public Speaking
Timeline
Chief Engagement & Gift Officer
Charcot-Marie-Tooth Association (CMTA)
01.2022 - Current
Development Director
Charcot-Marie-Tooth Association (CMTA)
01.2018 - 01.2022
Director of Community Engagement
Charcot-Marie-Tooth Association (CMTA)
01.2009 - 01.2018
Business Developer & Branch Manager
USSCO Federal Credit Union
01.1990 - 01.2003
Tour Organizer & Marketing Specialist
McIlwain Charter Bus Lines
Business Management Certificate -
Pennsylvania Highlands Community College
Leadership & Management Training -
American Management Association, CUNA Mutual
Special Needs & Patient Advocacy Training -
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