Summary
Overview
Work History
Education
Honors And Awards
Research Advocacy
Invited Presentations
Media Mentions
Advocacy Writing
Presentations
Publications
Timeline
Generic

JILL FELDMAN

Deerfield,Illinois

Summary

LUNG CANCER ADVOCATE Accelerate lung cancer research through collaborations with clinicians and scientists and as liaison between patient community and researchers/physicians Bring the collective patient perspective to the planning and implementation of clinical studies Embed a health equity lens in my work on initiatives and programs Provide support to those living with lung cancer and their families Raise awareness at the local, national, and international level

Overview

23
23
years of professional experience

Work History

Lead IASLC Language Guide

01.2021

Co-Chair National Lung Cancer Round Table (NLCRT) Survivorship Task Group

01.2022 - Current

Patient Advocate, National Lung Cancer Round Table (NLCRT) Steering Committee

01.2020 - Current

Member, National Lung Cancer Round Table (NLCRT) Stigma and Nhilism Task Group

01.2020 - Current

Member, OncoAlert and OncoAlliance

01.2020 - Current

Patient Advocate, NCI ECOG-ACRIN cancer research advocate committee and thoracic committee

01.2019 - Current

DOD CDMRP LCRP, Programmatic Review Panel

01.2019 - Current

Member, on behalf of EGFR Resisters, LungCAN

01.2019 - Current

Speakers Bureau, Lung Cancer Foundation of America

01.2018 - Current

Member, Patient Advocate Committee

International Association for the Study of Lung Cancer (IASLC)
01.2017 - Current

Co-Founder, EGFR Resisters Patient Group

01.2017 - Current

Patient Advisory Board, NCI Institute of Translation Medicine (ITM) Chicago

01.2017 - Current

Patient Advisory Committee, LUNGevity International Lung Cancer Survivorship Conference (ILCSC)

01.2017 - Current

Chair, Patient Advocacy Committee

IASLC
01.2021 - 01.2023

Co-chair Patient Advocacy Track, IASLC, WCLC 2021

IASLC
01.2021 - 01.2023

Patient Advocate, IASLC North America Conference for Lung Cancer Committee

01.2018 - 01.2022

Deputy Chair Patient Advocacy Committee

IASLC
01.2019 - 01.2021

Patient Advocate, Lung Ambition Initiative in Lung Cancer Care Program (ILC2)

01.2019 - 01.2020

Patient Action Committee, LUNGevity Foundation’s Project Transform

LUNGevity Foundation
01.2016 - 01.2018

LUNGevity Foundation, research committee

LUNGevity Foundation
01.2007 - 01.2010

President-Board of Directors

LUNGEVITY FOUNDATION
01.2007 - 01.2010

Vice President-Board of Directors

LUNGEVITY FOUNDATION
01.2005 - 01.2006

Chairman of Development

LUNGEVITY FOUNDATION
01.2001 - 01.2005

Education

Bachelor of Science - Journalism, Strategic Communications

University of Kansas
Lawrence, KS

Master of Arts - Education

DePaul University
Chicago, IL

Honors And Awards

  • OncoDaily’s top 100 Influential Women in Oncology, 2023
  • LUNGevity Foundation Face of Hope Award, 2020
  • CONQUER, Hero of Hope Award, 2015
  • National Women’s Survivor Convention Inaugural Event, Honored Guest, 2013
  • Make it Better, October 12, 2011, Thanks for Giving
  • AACR Scientist Survivor Program, 2019, 2021
  • Mentor and contributor IASLC Supportive Training for Advocates in Research and Science (STARS), 2019, 2021, 2022, 2023
  • ASCO/AACR Methods Clinical Cancer Research, 2022 – present
  • Research Advocacy Network, Advocate Institute, 2010

Research Advocacy

  • Peer Review
  • Conquer Cancer GSC, 2022-present
  • EGFR Resisters & LUNGevity Foundation Grants, 2020 – present
  • DOD CDMRP LCRP Consumer Reviewer, 2012-2018
  • PCORI – 2020-2021

Invited Presentations

  • Conferences
  • ESMO 2023, Disrupting the Paradigm in Early Phase Trials
  • NLCRT Annual Meeting 2023, Patient Perspective: Population vs Individual Risk Assessment for Lung Cancer Screening Eligibility
  • NLCRT Annual Meeting 2023, Patient Panel, Learning from Patients’ lived Experience, moderator and speaker
  • ASTRO 2023, The Future of Treating OMD in NSCLC: Dismantling the One-Size-Fits-All Approach
  • IASLC WCLC Opening Plenary 2023, Introduction of HRH Princess Dina Mired
  • IASLC WCLC Press Conference 2023, Recognizing Early Adopters of Non-Stigmatizing Language at WCLC 2022
  • ASCO Case-Based Panel 2023, A Patient’s Journey from Early Stage to Metastatic Lung Cancer
  • IASLC TTLC 2023, The Patient Voice in Clinical Trial Development
  • ELCC 2022, Survivorship Session
  • ASCO 2022, Real-World Data to Clinical Trials Patient Perspective
  • NLCRT Annual Meeting 2022, I Don’t Want to Survive: I Want to Live
  • ASTRO 2021, Presidential Symposium, RWD vs RCT Patient Perspective
  • AAADV Conference 2021, PROs in the drug development
  • IASLC, WCLC 2021 Stigma Plenary, Words Matter
  • IASLC, WCLC 2020 Plenary Diversifying Eligibility Criteria in Clinical Trials, Health Disparities
  • IASLC, WCLC Press Conference 2020, Patient Perspective Disparity Abstracts
  • IASLC, NACLC Keynote session 2020, The Paradigm Shift in Early-Stage Lung Cancer: Bringing the Patient Back into Personalized Medicine
  • ASCO, Education Program 2020, Lost in Translation: Patient Perspective on Patient on Communication in the Era of Precision Medicine
  • AACR-IASLC Joint Conference Lung Cancer Translational Science 2020, How Lung Cancer Advocates and Patient Groups Help Accelerate Research
  • IASLC, NACLC 2019, How Research and Advocacy Has Changed in Past Years
  • IASLC, WCLC Press Conference 2018, What Practice Changing Research Means to Patients
  • ECOG-ACRIN 2019, Oncogene-Driven Patient Groups: Involving Patient Advocates in Research
  • IASLC WCLC Press Conference 2018, Patient Perspective on Practice Changing Abstracts
  • IASLC, WCLC 2017, Press Conference, Care Team Award Speech and Presentation
  • Grand Rounds
  • Henry Ford Cancer Center Grand Rounds, 2023
  • Rush Supportive Oncology Grand Rounds, 2023
  • Ellison Institute, 2022
  • Massachusetts General Hospital Grand Rounds, 2021
  • Houston Methodist Cancer Center, 2020
  • GRACE Targeted Therapies 2019, Online Communities-Support, Education, Partnership and Facilitating Research
  • Other speaking events
  • DC Lung 2023, The Art of Oncology: Learning from Patients’ Lived Experience
  • OCS Director’s Series 2022, Beyond Prognostic Information – What Survivors Need
  • AACR 2022, Transformative Potential of Biomarkers Patient Perspective
  • Oncology Nursing Society Chapter Meetings, 2020, Oncology Nurse Perspectives in the Era of Precision Medicine
  • OncoAlert Colloquium 2020, What Cancer Research Means to Patients and Families
  • Oncology Nursing Society, 2019, Panel member for Best Practices in Biomarker Testing
  • Northwest Community, Shine a Light, 2018
  • Rush Nursing Summit, 2016 Working with Patient Advocates
  • University of Chicago, Nursing School, 2016-2018
  • Northwestern University, Nursing Conference, 2013
  • LUNGevity Foundation, Breathe Deep North Shore, 2012-2016, 2019

Media Mentions

  • WGN Chicago News, August 2, 2021, Kathy Griffin’s Lung Cancer Diagnosis Shines a Light on Need for Better Awareness, Treatment
  • Today Show, November 14, 2019, Shining a Light: Going Behind the Stigma Surrounding Lung Cancer
  • Culver Academies Alumni Magazine, Spring 2020, Feature Article Jill Feldman Advocate, Instructor and Educator
  • NBC Chicago Sports, 2017, Jill Feldman’s Special Night with the Bears
  • Cure, November 14, 2017, Examining the Relationship Between Stress and Lung Cancer
  • AtlanticLIVE, 2017, The Lung Cancer Connection/The Air We Breathe
  • CBS News Chicago, May 13, 2014, New Initiative Aims To Raise Awareness For Lung Cancer

Advocacy Writing

  • Ending Stigma in Lung Cancer: The IASLC Participates in a Collaborative Summit Held by the National Lung Cancer Roundtable, 2020
  • Lung Cancer Health Care Delivery, Community Building and Research: Are They Truly Inclusive? 2020
  • LungCancer.net blogs
  • LUNGEVITY FOUNDATION, Chicago, Illinois
  • President-Board of Directors
  • 2007-2010
  • Review and reassess mission and vision for organization
  • Strategize and develop plans for future fundraising activities, organizational growth, alliance relationships, infrastructure, research needs, and marketing activity
  • Operate as organization’s media liaison
  • Vice President-Board of Directors
  • 2005-2006
  • Managed all functions and activities of organization’s staff
  • Organized procedures and presentations of board meetings
  • Chairman of Development
  • 2001-2005
  • Oversaw all operations of both event and non-event fundraising activities
  • Managed teams of committee members responsible for developing fundraising ideas, implementation of those ideas, and the assessment of successfulness
  • Recruited, trained and coordinated 100+ volunteers on soliciting donations and sponsorships, and history, culture and uniqueness of organization
  • Coordinated with the communications committee to produce a newsletter, brochure, website and media kits for development of organization
  • LUNGEVITY Accomplishments
  • Named 2007 Charity Navigator Fastest Growing Charity
  • Increased fundraising totals from $150,000 in 2002 to $4+ million in 2008
  • Raised over $1 million through 33 national fundraising events in 2007
  • Developed sponsorship programs which increased event sponsorship more than 200% from 2002 to 2006.
  • Asco post newsreal

Presentations

  • IASLC, WCLC 2023, OA Recognizing Early Adopters of Non-Stigmatizing Language at IASLC WCLC2022
  • IASLC WCLC 2020, Mini OA How Lung Cancer Patients Perceive their Treating Doctors and Engage in Medical Decision Making
  • IASLC, NACLC 2020, Mini OA The Paradigm Shift in Treating Early Stage Lung Cancer
  • IASLC, NACLC 2019, Mini OA Impact of an EGFR Lung Cancer Diagnosis on Quality of Life
  • Panels, Workshops, Symposia
  • FOCR FDA, Oncology Real World Data Research Annual Roundtable, 2023
  • LUNGevity FDA, Statistical Forum on Crossover in Oncology Clinical Trials, 2023
  • HHS Beyond Altruism – Exploring Payment for Research Participation, 2022
  • ASCO FDA Workshop, Getting the Dose Right: Optimizing Dose Selection Strategies in Oncology, 2022
  • FDA Conversations on Cancer, More isn’t Always Better: Understanding Treatment Tolerability, 2022
  • FDA COA-CCT, Physical Function, 2021
  • FDA OCE, Project Livin’ Label, 2021
  • FDA OCE, Defining Clinical Benefit: Applications of Accelerated Approval in Lung Cancer and Precision Medicine, 2021

Publications

Bibliography ESMO Expert Consensus Statement for the Management of People with EGFRm Lung Cancer, 2021 Effect of participation in the EGFR Resisters Research Summit on Competence, Performance and Professional Productivity of Young Researcher, 2022 The Campaign to End Lung Cancer Stigma: The ACS National Lung Cancer Roundtable Efforts to Confront and Extinguish Lung Cancer Stigma, 2022 How Lung Cancer Patients Perceive their Treating Doctors and Engage in Medical Decision-Making: Lessons from Project PRIORITY, 2021

Timeline

Co-Chair National Lung Cancer Round Table (NLCRT) Survivorship Task Group

01.2022 - Current

Lead IASLC Language Guide

01.2021

Chair, Patient Advocacy Committee

IASLC
01.2021 - 01.2023

Co-chair Patient Advocacy Track, IASLC, WCLC 2021

IASLC
01.2021 - 01.2023

Patient Advocate, National Lung Cancer Round Table (NLCRT) Steering Committee

01.2020 - Current

Member, National Lung Cancer Round Table (NLCRT) Stigma and Nhilism Task Group

01.2020 - Current

Member, OncoAlert and OncoAlliance

01.2020 - Current

Patient Advocate, NCI ECOG-ACRIN cancer research advocate committee and thoracic committee

01.2019 - Current

DOD CDMRP LCRP, Programmatic Review Panel

01.2019 - Current

Member, on behalf of EGFR Resisters, LungCAN

01.2019 - Current

Deputy Chair Patient Advocacy Committee

IASLC
01.2019 - 01.2021

Patient Advocate, Lung Ambition Initiative in Lung Cancer Care Program (ILC2)

01.2019 - 01.2020

Speakers Bureau, Lung Cancer Foundation of America

01.2018 - Current

Patient Advocate, IASLC North America Conference for Lung Cancer Committee

01.2018 - 01.2022

Member, Patient Advocate Committee

International Association for the Study of Lung Cancer (IASLC)
01.2017 - Current

Co-Founder, EGFR Resisters Patient Group

01.2017 - Current

Patient Advisory Board, NCI Institute of Translation Medicine (ITM) Chicago

01.2017 - Current

Patient Advisory Committee, LUNGevity International Lung Cancer Survivorship Conference (ILCSC)

01.2017 - Current

Patient Action Committee, LUNGevity Foundation’s Project Transform

LUNGevity Foundation
01.2016 - 01.2018

LUNGevity Foundation, research committee

LUNGevity Foundation
01.2007 - 01.2010

President-Board of Directors

LUNGEVITY FOUNDATION
01.2007 - 01.2010

Vice President-Board of Directors

LUNGEVITY FOUNDATION
01.2005 - 01.2006

Chairman of Development

LUNGEVITY FOUNDATION
01.2001 - 01.2005

Bachelor of Science - Journalism, Strategic Communications

University of Kansas

Master of Arts - Education

DePaul University
JILL FELDMAN