Summary
Overview
Work History
Education
Skills
Accomplishments
Timeline
FELLOWSHIPS & APPOINTMENTS
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Kerry M. Sivia

Summary

Patient advocate and national speaker focused on hepatology, liver disease education, and patient-centered care. Dr. Stephen A. Harrison Patient Advocacy Fellow, 2025–2026 Inaugural Cohort. Member of the AASLD Patient Advisory Group, collaborating with hepatologists and patient advocates on patient education programming for The Liver Meeting and contributing to patient representation within AASLD. Additional experience includes patient education, health communication, conference speaking, and patient advisory engagement.

Overview

17
17
years of professional experience

Work History

Patient Representative, Patient Advisory Group

AASLD
01.2026 - Current
  • Volunteer, Term - January 2026 to December 2027
  • Lead patient education sessions on key hepatology topics, collaborating with top hepatologists for the Liver Meeting
  • Advise through voting on patient representatives for AASLD Committees
  • Advise AASLD on critical issues affecting the patient community, ensuring patient perspectives are integrated into decision-making
  • Co-writer for the first AASLD Tribute to a patient advocate for the late Anthony “Tony” Villiotti

Patient Representative, Individual Fundraising

AASLD
01.2024 - 12.2026
  • Volunteer, Term: Jan 2024 to Dec 2026
  • Assisted in the Individual Fundraising Committee with fundraising efforts for the AASLD Foundation by reaching out to individual members to request donations and support AASLD initiatives for research, programs, and awards.

Patient Advocate

Fatty Liver Alliance
08.2023 - Current
  • Participated as Patient Perspective Guest, 4th Annual MASLD/MASH Primary Care Summit, contributing insights on patient experiences in managing fatty liver disease.
  • Your Liver, Your Health Chicago Event, June 2025 - Patient Experience Speaker / Panelist
  • Served as Patient Perspective Guest, 2nd Annual NAFLD/NASH Primary Care Summit, sharing personal experiences and perspectives to inform healthcare providers.
  • Authored blog posts focused on patient experiences, educating readers on living with liver conditions and advocating for improved patient care.

Surgery Scheduler

North Suburban Oral Surgery
05.2024 - 10.2025
  • Coordinated patient appointment scheduling to optimize provider availability
  • Informed patients of visit details to enhance understanding and preparedness
  • Maintained electronic charts with up-to-date medication and allergy information for accurate patient care
  • Coordinated basic information updates between providers and staff

Administrative Professional

Advanced Resources
Northbrook, IL
08.2016 - 09.2023

Provided temporary administrative and customer experience services at assignments listed below:

HR Coordinator - Northshore University HealthSystem, Skokie, IL (March 2023 - September 2023)

  • Verified employee benefits in hospital HR database to ensure accuracy and active status
  • Submitted requests to update or correct benefits information with the insurance company.
  • Responded to calls and email inquiries on HR services, addressing benefits, paid time off, and leave of absence

Data Entry Assistant, Underwriters Laboratories, Northbrook, IL (January 2023 - January 2023)

  • Entered resumes from career fairs into an Excel database and ensured accuracy.
  • Entered and maintained data in various databases, ensuring accuracy and consistency.
  • Assisted in organizing and categorizing documents for efficient retrieval.
  • Processed incoming data requests, facilitating timely responses to team inquiries.

Recruiter, Curion Insights, Deerfield, IL (November 2022 - December 2022)

  • Contacted potential study participants by phone to assess interest and eligibility for current studies.

Data Entry Assistant, McDermott Will & Emery, Chicago, IL (March 2022 - November 2022)

  • Rescheduled 200+ attorney meetings across 10+ U.S. offices into new software system, facilitating nationwide upgrade
  • Entered and maintained sensitive legal trademark filings and client data in secure database, ensuring confidentiality and data integrity

Additional Professional Assignments (2016-2022)

Advanced Resources
11.2021 - 01.2022
  • Loan Servicing Administrative Clerk, Consumers Credit Union, Gurnee, IL (November 2021 - January 2022)
  • Order Entry Customer Service Associate, Learning Resources, Vernon Hills, IL (May 2021 - August 2021)
  • Loan Setup Assistant, Dovenmuehle Mortgage, Lake Zurich, IL (October 2020 - March 2021)
  • Customer Service Representative, Protective, Bannockburn, IL (June 2018 - September 2020)
  • Installation and Warranty Coordinator, Scotsman Ice Systems, Vernon Hills, IL (January 2018 - May 2018)
  • Staff Assistant, Trustmark Insurance Company, Lake Forest, IL (November 2017 - January 2018)
  • Transaction Coordinator & Commissions Support Processor, NRT, Lincolnshire, IL (August 2016 - November 2017)

Classroom and Office Support

St. Anastasia School
08.2009 - 06.2016
  • Substituted for teachers across all subjects from Preschool to 8th grade, followed and adapted lesson plans.
  • Supported classroom activities and reading lessons, supervising groups of 60+ children to enhance learning environment
  • Provided office support through phone coverage and clerical tasks, facilitating daily operations
  • Managed office phones and clerical tasks during lunch breaks, ensuring seamless operations and serving as backup during emergencies

Education

Bachelor of Arts - Communications

Clarke University
Dubuque, IA
12-2006

Skills

  • Patient Advocacy
  • Public Speaking
  • Patient Communication
  • Clinical Trial Research Literacy
  • Healthcare Navigation
  • Donor Outreach
  • Data Management
  • Administrative Coordination
  • Team Collaboration
  • Patient Privacy Compliance
  • Public Speaking

Accomplishments

  • Digestive Diseases Week, American Gastroenterological Association (AGA) - Invited Lecture Panelist, Individual Presentation: The Impact of Nutrition on Metabolic Dysfunction-Associated Steatotic Liver Disease: A Patient Perspective, Main Session: The Role of Nutrition and Lifestyle Change in Treating MASLD/MASH in Children and Adults (Chicago, IL; May 2026)
  • United Liver, Patient Advisory Board member (Remote; February 2026 - present)
  • The Global NASH/MASH Council, Council Member (Remote; February 2026 - present)
  • The Liver Meeting, American Association for the Study of Liver Diseases' (AASLD) - Speaker/Panelist, Individual Presentation: The Impact of Nutrition on Metabolic Dysfunction-Associated Steatotic Liver Disease: A Patient Perspective, Main Session: Elements of Metabolic Dysfunction-Associated Steatotic Liver Disease/Metabolic Dysfunction-Associated Steatohepatitis for Pediatric and Adult Patients (Washington, DC; November 2025)
  • ISGlobal & Healthy Livers Healthy Lives, Global Metabolic Health Roundtable (GMHR) Series: Addressing the Public Health Threat of MASLD/MASH and other Major NCDs (side event of the United Nations 80th General Assembly) - Participant, (New York, NY - Sep 2025)
  • American Diabetes Association - Virtual Roundtable Discussion on Metabolic-Dysfunction Associated Liver Disease (MASLD/MASH) - Participant (Virtual; August 2025), “Integrating Clinical and Patient Perspectives: Latest Developments in Exercise and Lifestyle Intervention for MASLD/MASH Management” Webinar - Panelist (Virtual; November 2024)
  • Madrigal Pharmaceuticals - Patient Advocate (Remote, Nov 2024 to Present)
  • The Liver Meeting, AASLD Foundation - #HepatologyHero, Named by Dr. Mary Rinella (San Diego, CA; November 2024)
  • Health Monitor Magazine - Featured Patient, “MASH was my launchpad to a healthier life” (April 2025)
  • Forefront Magazine, UChicago Medicine - Featured Patient, “How one woman reversed her fatty liver disease due to obesity” (Web: Winter 2022; Print: Summer 2023)

Timeline

Patient Representative, Patient Advisory Group

AASLD
01.2026 - Current

Surgery Scheduler

North Suburban Oral Surgery
05.2024 - 10.2025

Patient Representative, Individual Fundraising

AASLD
01.2024 - 12.2026

Patient Advocate

Fatty Liver Alliance
08.2023 - Current

Additional Professional Assignments (2016-2022)

Advanced Resources
11.2021 - 01.2022

Administrative Professional

Advanced Resources
08.2016 - 09.2023

Classroom and Office Support

St. Anastasia School
08.2009 - 06.2016

Bachelor of Arts - Communications

Clarke University

FELLOWSHIPS & APPOINTMENTS

  • Dr. Stephen A. Harrison Patient Advocacy Fellowship - Fatty Liver Foundation, Sep 2025 to Sep 2026
  • Selected for a national fellowship to advance patient-centered care, and amplify the patient voice in research and policy