Summary
Overview
Work History
Education
Skills
Publications
Speakingengagements
Timeline
Generic

Teonna Woolford

Owings Mills,MD

Summary

Knowledgeable Advocate with robust background in advisory roles, offering critical insights and strategic guidance. Proven track record of collaborating with executive teams to drive impactful decisions and foster organizational growth. Demonstrated expertise in leadership and strategic planning.

Overview

2025
2025
years of professional experience

Work History

Founder and CEO

Sickle Cell Reproductive Health Education Directive
  • Managing the day-to-day operations of the only organization that focuses on sickle cell and reproductive health

Committee Member for NIH Sickle Cell Disease Advisory Committee

  • Setting research priorities

Committee Member for NIH Democratizing Education for Sickle Cell Disease Gene Therapy

  • Advising on gene therapy education for the sickle cell community

Council of Change

Pfizer
- Current

Advisory Board Member

01.2021 - Current
  • Novo Nordisk Advisory Board Member

Advisory Board Member

01.2020 - Current
  • Agios Advisory Board Member

Content Manager

Sickle Cell 101
12.2019 - 02.2020
  • Spearhead a committee of SCD patients and caregivers who provide input on education disseminated in and out of the Sickle Cell community

Research Assistant

Children’s National Hospital
09.2019 - 02.2020
  • Collecting data for three Sickle Cell studies

Patient Representative

Food and Drug Administration
06.2019 - Current
  • Provide direct input to agency and staff sharing valuable insight on personal experiences with Sickle Cell Disease (SCD), conditions, and devices while gaining access to confidential information
  • Sit in on public hearings for new drugs seeking FDA approval

Speaker Program

Novartis
06.2019 - 01.2022
  • Speak to a range of audiences on personal Sickle Cell experience and discuss the current and future advancements in medicine for SCD
  • Provide patient education alongside a Sickle Cell Specialist and share story with other patients, caregivers and doctors

Advisory Board Member

BlueBird Bio
01.2017 - 01.2020

Education

BS - Business Management

University of Maryland Global Campus
10.2024

Skills

  • Public Speaking
  • Critical thinking
  • Adaptability
  • Innovative Mindset
  • Crisis Management
  • Networking capabilities
  • Organizational Leadership
  • Conflict Mediation
  • Planning and coordination
  • Strategic business planning
  • Diversity and Inclusion

Publications

  • American Society of Hematology 2021 guidelines for sickle cell disease: stem cell transplantation, Kanter J, Liem RI, Bernaudin F, Bolaños-Meade J, Fitzhugh CD, Hankins JS, Murad MH, Panepinto JA, Rondelli D, Shenoy S, Wagner J, Walters MC, Woolford T, Meerpohl JJ, Tisdale J, Blood Advances, 09/28/21, 5, 18, 3668-3689, 10.1182/bloodadvances.2021004394C, 34581773, PMC8945587
  • Effect of donor type and conditioning regimen intensity on allogeneic transplantation outcomes in patients with sickle cell disease: a retrospective multicentre, cohort study
  • Expecting more: the case for incorporating fertility services into comprehensive sickle cell disease care, Pecker LH, Oteng-Ntim E, Nero A, Lanzkron S, Christianson MS, Woolford T, Meacham LR, Mishkin AD, Lancet Haematol, 03/01/23, 10, 3, e225-e234, 10.1016/S2352-3026(22)00353-2, 36708736, PMC10318482
  • Sickle Cell Disease and Gene Therapy — Patient and Physician Perspectives, Michael DeBaun, M.D., M.P.H., Matthew Heeney, M.D., Terry Jackson, Ph.D., Dan Longo, M.D., Melesa Love, Trinity Love, Phillip Okwo, Alexis Thompson, M.D., M.P.H., Cassandra Trimnell, Teonna Woolford

Speakingengagements

  • Sickle Cell Disease Association of American Convention, Lonzie Lee Panel, 10/01/13
  • Sickle Cell Community Consortium Warrior Convention, Transplant Panel, 06/01/17
  • NIH Accelerate the Cure, patient Panel, 11/01/17
  • Sickle Cell Disease Association of America, Conquering Battles of the Mind Patient Panel, 10/01/17
  • Sickle Cell Disease Association of America Convention, Patient Curative Therapies Panel, 10/01/18
  • National Academies of Sciences, Engineering, and Medicine, Patient Perspectives on Health Care Access, Innovative Therapies, and Other Related Issues Panel, 06/01/18
  • FDA-American Society of Hematology Clinical Endpoint Workshop, Table Talk Patient and Family Panel
  • Foundation for Sickle Cell Disease Research, Sickle Cell and Chronic Pain Management Symposium, 10/01/21
  • Howard University, Roland B Scott Lecture, 2021
  • Howard University, I Want Somebody to Love, 06/01/23
  • National Academies of Science, Genome Sequencing in Healthy Newborn Panel, 06/01/23
  • National Academies of Science, Women’s Health Panelist, 10/01/24

Timeline

Advisory Board Member

01.2021 - Current

Advisory Board Member

01.2020 - Current

Content Manager

Sickle Cell 101
12.2019 - 02.2020

Research Assistant

Children’s National Hospital
09.2019 - 02.2020

Patient Representative

Food and Drug Administration
06.2019 - Current

Speaker Program

Novartis
06.2019 - 01.2022

Advisory Board Member

BlueBird Bio
01.2017 - 01.2020

Founder and CEO

Sickle Cell Reproductive Health Education Directive

Committee Member for NIH Sickle Cell Disease Advisory Committee

Committee Member for NIH Democratizing Education for Sickle Cell Disease Gene Therapy

Council of Change

Pfizer
- Current

BS - Business Management

University of Maryland Global Campus
Teonna Woolford