Genesis Jones
Summary
Dependable Warrior Project Manager committed to serving diverse patient needs. Actively communicates with healthcare services and policymakers for effective care delivery. Proficient in analyzing case files and patient accesses, resulting in faster inquiry response times and streamlined information flow. Maintains high standards of ethics, professionalism, and regulatory compliance to alleviate stressors and de-escalate conflicts. Dedicated to delivering exceptional performance and thriving as a valuable team player.
Overview
3
3
years of professional experience
1
1
Certification
Work History
Patient Navigator
Links2Equity
07.2024 - Current
- PNH Shared Decision-Making Steering Committee Overall goal is to create a comprehensive toolkit designed specifically for the PNH (Paroxysmal Nocturnal Hemoglobinuria) community
- PNH Health Equity Steering Committee Overall goal is to produce a comprehensive white paper tailored for PNH patients, caregivers, and physicians etc
- Applied administrative knowledge and courtesy to explain procedures and services to patients.
Community Partners Steering Committee
PRESCENCE (CHARISMA)
01.2024 - Current
- Designed to gather valuable feedback and shape the upcoming PRESENCE (CaRISMA 2.0) trial, focusing on peer support and cognitive behavioral therapy for adolescents and young adults experiencing SCD pain
- Bi-weekly meetings
- Networked with other professionals and organizations to expand contacts and opportunities.
- Achieved successful client outcomes by identifying and addressing their unique needs and goals.
- Prepared and presented reports on status of projects and initiatives.
Young Adult Rare Representatives
02.2023 - Current
- A group of young adults making a difference through a commonality (rare diseases) that brings them together
- Building connections through speaking opportunities centered around awareness for those with other rare diseases through active planning, legislative, and advocacy
Care Coordinator I
Care Coordinator I
01.2023 - Current
- Monitored daily activities and schedule for clients throughout the day
- Scheduled calls for clients to speak with doctors or therapists
- Built strong relationships with clients to deliver emotional support and companionship.
- Managed patient caseloads effectively, ensuring timely follow-up and appropriate interventions.
- Acquired daily vitals and inserted the information into Lighting Step
- Placed daily lunch orders for the clients and handled the food when necessary
- Dropped off clients to desired location after Partial Hospital Program (PHP) was provided
- Coordinated with parents with ongoing information about their child daily
- Attended treatment meetings about the clients and their ongoing progress
- Obtained Urinary Analysis weekly and dropped them off for assessment
- Provided supervision and delegation for the clients consistently
Patient Advocate
Rare Disease Diversity Coalition
01.2022 - Current
- Company Overview: RDDC works to eliminate health disparities for diverse rare disease patients
- By developing and deploying an evidence-based suite of advocacy tools and research interventions that will provide tangible solutions for rare diseases
- February: RDDC Awarded Genesis Jones a 'Patient Rare Voice Award 2024'
- Clinical Trails Working Group Monthly meetings w/agendas & research, survey reports, discussions etc
- Patient Provider Caregiver Journey Working Group Monthly meetings w/agendas & research, survey reports, discussions etc
- Clinical experience, Research experience and Data exposure
- RDDC/BWHI/RDCRN Writing Group/ Internal Writing Group Patient Experience /Internal Writing Group(Data exposure, research discussion, etc)
- Research Articles: Insights into Barriers to Care in the Rare Disease Community (RDDC/NORD) (not available yet)
- Racial and Ethnic Disparities in Rare Disease Clinical Research: A Meta-Analysis of Enrollment Patterns in the NIH Rare Disease Clinical Research Network (not available yet)
- RDDC works to eliminate health disparities for diverse rare disease patients
- By developing and deploying an evidence-based suite of advocacy tools and research interventions that will provide tangible solutions for rare diseases
- Collected and analyzed patient feedback to evaluate quality of care.
Patient Services Team, Internship
National Donor Marrow Program - Be the Match
06.2022 - 08.2022
- Reviewed and researched Sickle Cell protocols to improve the Jason Carter Trials website
- Developed relationships as a valued member of a cross functional team
- Reviewed cases to gain perspective before, during and after transplant to provide input
- Attended organizational events to gain preceptive, while gathering feedback from stakeholders
- Worked with various teams to help produce and implement projects on weekly basis
- Applied new skills using platforms such as Outlook, Asana, & LinkedIn Learning
- Presented a final project to showcase gained experiences and development
Education
Bachelor of Science - Child Development and Psychology
The University of Texas At Dallas
Richardson, TX05.2023
Associates of Science -
Richland College
Masters in Clinical Mental Health Counseling (LPC) -
Lamar University
Beaumont, TX05.2025
Skills
- Microsoft Office
- Outlook
- G Suite
- Client Documentation
- OKTA
- Lightning System
- UA management
- Treatment Management
- Literature Review
- Study Design
- Critical Thinking
- Quick learner
- Time Management
- Problem solver
- Strong communication
- Cultural Competency
- Medical Terminology
- Confidentiality
- Attention to Detail
- Calm and Effective Under Pressure
- Team Collaboration
Websites
Certification
- CPR Training / First AID Training
- Workplace Violence
- Infection Control and Prevention Basics (Non-Clinical)
- HIPAA Basics
- Compliance Basics
- Care Delivery, Culturally Competent
- Safe Driving / Transporting Clients
- Rescue Inhaler Administration
- EpiPen Administration
- Naloxone Administration
- Respecting Boundaries
- Client Rights
- Preventing Sexual Harassment, Types, Reporting and Outcomes
- Ethical Code of Conduct
- Hand Hygiene
- Bloodborne Pathogens and Standard Precautions (Non-Clinical)
- Off-site Crisis Management Protocols
Publications
Rebirth: A Sickle Cell Warrior’s Crossover, 06/2022
Awards
Patient Rare Voice Award, 02/2024
Accomplishments
- Collaborated with team of five in the development of Sickle Cell Warrior's Project. To showcase Warrior's stories for Sickle Cell Awareness Month.
- Achieved becoming an Author of Rebirth & Resilient through effectively establishing a network of people while publishing book online the year 2021.
- RDDC awarded Genesis the "Patient Rare Voice Award" in February 2024.
Affiliations
- National Donor Marrow Program (Patient Ambassador) Rare Disease Diversity Coaliation Links2Equity PRESENCE (ChARISMa)
- Rare Disease Diversity Coaliation
- Links2Equity
- PRESENCE (CHARISMA
Timeline
Patient Navigator
Links2Equity
07.2024 - Current
Community Partners Steering Committee
PRESCENCE (CHARISMA)
01.2024 - Current
Young Adult Rare Representatives
02.2023 - Current
Care Coordinator I
Care Coordinator I
01.2023 - Current
Patient Services Team, Internship
National Donor Marrow Program - Be the Match
06.2022 - 08.2022
Patient Advocate
Rare Disease Diversity Coalition
01.2022 - Current
Associates of Science -
Richland College
Bachelor of Science - Child Development and Psychology
The University of Texas At Dallas
Masters in Clinical Mental Health Counseling (LPC) -
Lamar University
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